:(

Well,
I am not sure where to start with this. The last few days have been really long. For those that don't know, I went and got my 20 week ultrasound. The doctor there thought I should have an MRI done because she thought the baby might have dandy walker syndrome. She didn't really answer my questions really well, and she made me feel uncomfortable. So I waited till I talked to my normal doctor, he said we should go ahead and do the MRI.

On Friday, I went and did the MRI. I was still hoping for the best. Well all weekend it was pretty much all that I could think about. I couldn't wait any longer and I called the nurse on Monday morning. She called me back a couple of hours later and told me the MRI confirmed that my baby has Dandy-Walker.

So now I am trying to still hope for the best. Some people have this and are fine. However that isn't always the case. So i don't even know what to expect. I am so worried about my little one. This world is hard enough and for her to come into the world and has a problem to start with...it is just so unfair for such a small little baby. I feel like I should be doing something for her. But there really isn't much for me to do. I am praying for her, but besides that there isn't much to do.

I am going to talk to a doctor on Wednesday and see where to go form here. They have mentioned sending me to Japan or Hawaii to have my baby. I don't know what the chances are? It is just kinda scary. I would rather stay here, but of course I will do what I need to for the baby.

I just have no idea what to expect and I hate to plan for the worst, I am not even sure what that means. Hopefully the doctor that I talk to on Wednesday will help with some of the questions that we have....


Here is a website that talks about it. I know there aren't many people that have heard of it. I didn't know anything about it.
http://www.ninds.nih.gov/disorders/dandywalker/dandywalker.htm